The oil, if started early in boys with ALD but no sy… The dominating story of Lorenzo’s Oil is the struggle of man against a heartless nature, in this case, ironically, Lorenzo’s and Michaela’s own genes. The general public can learn that horrible diseases can happen to anyone. Waiting is perceived as something that is synonymous to doing nothing. 4. 4th Sep 2017 These professionals give an examples of how well some professionals work with the parents rather than the patients in this case. Research done regarding Lorenzo’s disease has shown little to no effect of taking the oil during the illness, but shows results when taken before the illness. His parents, declined by many researchers again, finally discuss a “cure” with a Chemist involving oils to add to their son’s daily diet. In as much as other members would want to see their children get better on a faster pace, they are not discounting the fact that they lack expertise on this matter. The protocols applied to ordinary cases may not be beneficial to vulnerable populations Researchers should double their efforts in addressing the concerns of these communities. The protocols that they follow are mandatory in scientific research. Both films depict scenes that provide the viewers with an analytical perspective on the pharmaceutical industry. Lorenzo's oil is a treatment developed for childhood cerebral adrenoleukodystrophy (ALD), a rare and typically fatal degenerative myelin disorder. Patients can also learn not to count on a “cure” for a disease that is incurable. They can stop producing c24 and c26 by stocking it with another type of fat. Lorenzo is a boy's name of Spanish, Italian origin meaning "from Laurentium". In here, it can be argued that the idea of being patient does not readily apply. Lorenzo's oil is named after a child, Lorenzo Odone, who developed ALD. Similarly, it is also in-charge to report the doctors’ scientific developments regarding this matter. Lorenzo's Oil (1992) Plot. Lorenzo who was diagnosed with his illness at the age of 7 technically could not do much for himself at the time of diagnoses. Foundation members are also in dire need of an immediate cure. The only effective treatment is a stem cell transplant from a matched sibling, but only about 1 … (2016, Jun 23). The man whose rare nerve disease inspired the moving film Lorenzo’s Oil has died aged 30, having lived 22 years longer than doctors predicted. Health care providers in this instance should see the glass half full rather than half empty. Lorenzo takes his illness day by day. In as far as vulnerable populations are concerned, it should be stressed that the needs of these groups are highly different from other individuals. VAT Registration No: 842417633. To a certain extent, this can be described as a proactive move. Sorry, but copying text is forbidden on this website. When the oil was first given to Lorenzo, his VLCFA levels reduced rapidly from very high to normal. He spent long hours in the library trying to comprehend ALD’s mystery. Lorenzo truly avoids death and dying by defying the odds and surviving his illness for two decades longer than expected. But then again, as manifested in the film, this group would still prioritize the image and reputation of the business establishments that they represent. Lorenzo seems to avoid the reality of death and dying. This kind of revelation spells triumph and success. Given such situation at hand, the foundation cannot be as proactive as the Odones. Lorenzo begins to show signs of neurological problems when he and his family move back to the United States for his dad’s military work. Lorenzo learns that his health, disease, and illness although incurable can be fought with compassion and strength. As men and women of science who went through formal education and therefore considered as experts in the field, the validity of their recommendations can be only affirmed or debunked once experiments and trials are conducted. Showing all 2 items Jump to: Summaries (2) Summaries. By continuing we’ll assume you’re on board with our cookie policy, The input space is limited by 250 symbols. In addition to that, these companies also have to consider other matters such as its legal implications, and all the hassles that they have to go through in obtaining government approvals and recommendations. Studies conducted about it are very limited. Lastly, the individuals afflicted with ALD and their respective families comprise the fourth community. They called the medicine, an extract of acids in olive and rapeseed oils, Lorenzo’s Oil. How does a sense of time differ for the different groups? Compared to lower forms of animals, human beings can be pretty reactive when it comes to the treatment that they receive. Any opinions, findings, conclusions or recommendations expressed in this material are those of the authors and do not necessarily reflect the views of AUEssays.com. First of all, ALD is a rare disease. This group cannot afford to simply rely on their emotions to provide conclusions. He is not treated horribly by many doctors; he is more the less treated like a boy with a disease that has no cure. Consuming the oil reduces the serum level of VLCFAs. The sentiments of the Odones are also felt by the people behind the ALD foundation. However, from a critical perspective, Dr. Nikolais has been efficient in practicing objectivity. Therefore, balancing interests is never an easy job for the foundation. Aug 23, 2011. Patients can also learn that researchers do care and they will help as much as they can to aid in a patient’s health. Based from the information that they have gathered, the results of their studies should also help vulnerable populations acquire full support from the government. However, the sentiments of medical professionals are in stark contrast to the values expressed by the patient and his or her family. I feel as if the events of the film played out appropriately. On a closer examination of the matter, Lorenzo’s Oil has successfully shown the struggles of families afflicted with rare diseases, not just ALD. In the meantime, it is pretty obvious that doctors are in favor of long intervals. The oil, found by Lorenzo’s dad, brings hope to him and his family. Time in here is seen as an ally rather than an enemy, which could aid doctors in effective answers. Lorenzos Oil is a 1992 movie that depicts the circumstances surrounding the development of the Olive and Rapeseed oil extract that is used in the treatment of ALD patients. The first community is represented by those working in the medical arena. Augusto and Michaela Odone, the real-life models for the parents in "Lorenzo's Oil," went through all of those stages when their son was diagnosed with adrenoleukodystrophy (ALD), a rare nerve disease that strikes only little boys and was always fatal. Explain how the interests and values collide. Anyone can become involved in helping whether its just by doing little things. I would assume that as a child one cannot grasp the thought of death or dying, but more the less just barely be able to understand that he is sick with an incurable illness. They are trained to strictly follow each step and rigidly record any change or development. Instead of resorting to sugar-coated promises, the doctor gave the Odone couple a full picture of the things that could happen to Lorenzo. Registered Data Controller No: Z1821391. 6. Looking for a flexible role? Lorenzo needed help from his parents after his illness became severe thus classifying him as disabled to me. An Introduction to Survey Research, Polling    and Data Analysis. Jubilation is expected since a preliminary cure is now available. ALD Lorenzo’s Oil Lorenzo’s Oil is a combination of a 4:1 mix of oleic acid and erucic acid, extracted from rapeseed oil and olive oil designed to normalize the accumulation of the very long chain fatty acids in the brain thereby slowing the progression of adrenoleukodystrophy (ALD). After being told that there is no cure by some doctors, they begin to travel and meet with many different people, doctors, scientists, researchers, etc., who are willing to do all they can to help find a cure for their son. This will see to it that possible complications could be avoided. In addition to that, the technological gadgets and equipment that were used before were not as sophisticated as the materials utilized today. The oil, found by Lorenzo’s dad, brings hope to him and his family. As previously mentioned, as business organizations utilize their time for certain tasks or projects, its importance is measured through the possible profit that the endeavor can deliver. Lorenzo’s Oil Essay The film is based on the true story of Augusto and Michaela Odone and their son Lorenzo. Patients can learn that people can have an effect in finding a “cure”. However, they have to follow the timelines provided by the doctors. This is something that cannot be overtly dismissed as a sign of neglect. As shown in the film, Lorenzo’s parents prefer to take risks rather than merely rely on the doctors. (1996). After much hard work, they helped develop an oil made from olive and rapeseed, which they named "Lorenzo's Oil." Lorenzo accepts his disease as anyone must once they are told they have something inoperable. Factual evidence is highly important to these individuals. Unfortunately, the Odones find it pretty difficult to openly accept such kind of set-up. Being disabled to me is when someone is not able to function regularly without assistance whether their disability be visible or invisible. In the movie, the Odone’s compare their studies to those done by animal experimentation finding vague results in the process. The story is based off a true story as the parents, Augusto and Michaela Odone, take care and search with uncertainty for a cure for their son Lorenzo. With Nick Nolte, Susan Sarandon, Peter Ustinov, Kathleen Wilhoite. The Odone’s have been faced with a very hard challenge and do as much as they can to stop the disease their son is infected with. In effect, the foundation serves as a mediator. Therefore, in order to achieve accuracy, overlapping factors and variables are taken into full consideration. It is based on the true story of Augusto and Michaela Odone, two parents in a relentless search for a cure for their son Lorenzo's adrenoleukodystrophy (ALD). The only thing which could have been done differently in the film was not acting as if they found a “cure” but more the less acting as if they found an agent that helps one who suffers from ALD. Accuracy is the ultimate principle that guides the medical arena. It has shown the other side of the story, which is commonly taken for granted in real-life scenario. The oil helps in repair in some of the damaged parts of the brain but does not aid in repairing the myelin deficiency in the brain. In case you can’t find a sample example, our professional writers are ready to help you with writing Get a verified expert to help you with Lorenzo’s Oil Movie Review. The movie, “Lorenzo’s Oil,” is about a family dealing with the tragic news of their son diagnosed with a rare genetic disorder called ALD. ALD is a very rare disease which effects a very small number of people in the United States. In Lorenzo his c24 and c26 rises four times its normal average. The general public can also learn from this that parents and family members can do so many things to help their child or loved one. What other reflections or comments applicable to research with human subjects does this movie evoke? Company Registration No: 4964706. "You must agree to out terms of services and privacy policy", Don't use plagiarized sources. Being 7 years old, death does not seem to be a realistic thing. Although the Odones proved the merit of their contentions and arguments, it is pretty unfair for the doctors’ part to be labeled as inconsiderate individuals. As he begins to lose neurological functions, life becomes much harder. Copyright © 2003 - 2021 - AUEssays is a trading name of All Answers Ltd, a company registered in England and Wales. Lorenzo's oil is used as a treatment for two related inherited conditions that affect the nervous system. The film has also managed to show how scientific experts deal with this matter at hand. Therefore, gathering evidences and other resources cannot be done overnight. It was gen… Weisberg, Krosnick and Bowen (1996) explained that research ethics is particularly concerned on preventing data abuse and misuse. Lorenzo’s Oil in clinical trials Film Studies Doctors said that he would lose all his functions and die within two to three years. In as far as Lorenzo’s Oil is concerned, there are scenes that exemplify how researchers observe ethical conducts. The story is based off a true story as the parents, Augusto and Michaela Odone, take care and search with uncertainty for a cure for their son Lorenzo. How did the researchers abide by or deviate from the standard of ethical conduct in research that you have read? To export a reference to this article please select a referencing stye below: If you are the original writer of this essay and no longer wish to have your work published on the UKDiss.com website then please: Study for free with our range of university lectures! The Odone’s have helped scientists and doctors today give patients with ALD relief and hope. They eventually learned that ALD leaves the body unable to break down big fat molecules, either molecules the body makes itself or ones that enter the body through food. For those whose lives are affected by ALD, long intervals can eventually lead to death. Lorenzo Odone died on Friday at … People use Lorenzo's oil as a medicine. These lead to lack of hearing, lapses, seizures, and eventually hyperactivity in the brain. Over the years, the treatment has gained tremendous recognition thanks to ongoing scientific research, the Myelin Project, and the 1992 feature film, Lorenzo's Oil. Lorenzo deals with his illness very strongly. Lorenzo’s battle will show us how one struggles with disease and illness but strives with his loved ones by his side. The foundation is concentrated on forming a community wherein there is a commonality of experience that can help them connect and understand the struggles of each other. Michaela and Augusto, devastated by Lorenzo's diagnosis, decided to research ALD even though neither had a scientific or medical background. The oil itself is a 4:1 mixture of oleic and erucic acids – found in common cooking oils. At a glance, Dr. Nikolais’ protocols seemed harsh and cruel. Lorenzo’s Oil – Film Synopsis and Analysis Lorenzo’s oil touches the hearts of most as you watch the story of a young boy battling adrenoleukodystrophy or ALD. The idea for Lorenzo’s oil was inspired by insights that came out of this conference. The body did not reject nor accept the treatment but rather just let the treatment work on his body. Although not directly stated, still, the slight hint of apprehension shown by the drug company which aided the Odone, was somehow affected by its business orientation wherein time, return of investments and profit share a special relationship. However, it is not just the difficulty per se that prevents these establishments.

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